Today’s Special

Saturdays, school holidays, vacations… anytime’s a good time to go crazy with Alex at home. He loves structure; we love to sit around and catch up on reading, do a little housework, sip coffee. In short, no structure. This is fine for an occasional weekend. But a long school break (and we’re on Day 9, with a few days to go) brings its own challenges. Here’s a slice of what it’s like and how we cope. This podcast is available in our archives.

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Few issues come with more emotional freight than whether to create a special-needs trust — monies put aside for your disabled child’s adulthood, when a parent is no longer around. We’re wrestling with the many, many, many pros, cons, and details of creating such a trust for Alex. In this first podcast discussing trusts, we talk about how we feel that such a fund may well be necessary for his future.

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Grrrrrrrrrrrrrrr! Alex pours milk down the sink … asks for pizza/chicken/hot dogs in a restaurant, then won’t eat them … refuses to sit at the table with us. Sometimes it’s typical 8-year-old behavior; sometimes it’s autism. Whatever it is, it’s frustrating. Especially on a long weekend. Here’s how we cope.

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