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Archive for the 'Family' Category

Have a super happy autism day!

Sunday, April 6th, 2008

April is Autism Awareness Month, and as Jeff said to Jill, “What the hell do we need this for? I’m always aware of autism!” Then an old friend of Jeff’s sent him an email saying, “I searched in vain for a Happy Autism Awareness Day card to send you.” Jill and Jeff, whose 9-year-old son Alex has PDD-NOS, then wondered what message these cards could carry. Would they be humorous or heartfelt? Caring or callous? They discuss some possibilities and the idea of caring for someone who is going through something you just don’t understand.

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Wish list

Friday, February 29th, 2008

In a perfect world, parents of autistic kids would have every need met. But Jill and Jeff don’t live in a perfect world, and in this cast they talk about what they’d like to see available for services to autistic kids and their families, with ideas — playgrounds, insurance, rec programs, tax breaks — ranging from the fantastic to the commonsense.

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And the Winner Is

Wednesday, November 7th, 2007

Scads of movies and TV shows have featured developmentally challenged characters, from “Rain Man” to “Something About Mary” to “The Office.” As parents in the trenches of special-needs, Jill and Jeff offer their insights into some of these portrayals, and recommend what movies to catch, and avoid.

Some movies we mention (but don’t have time to discuss): “Bill,” “Pumpkin,” “I Am Sam,” and “Riding the Bus With My Sister.” Pascal Duquenne is a Belgian (not French) actor with Down Syndrome with roles in “Toto the Hero” and “The Eighth Day.”

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Full stream ahead

Sunday, October 14th, 2007

Jill and Jeff would love to see Alex start to mainstream with typically developing students. They discuss the pluses and minuses, the worries and hopes of putting him in an unfamiliar situation for a few minutes a day. Will the new teacher accept him? Will the other students? Will it help him learn some social behaviors?

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Mother of Invention

Thursday, August 23rd, 2007

Jill and Jeff’s friend Mindy is the mother of a special-needs child — and a whiz at fashioning devices for him with little more than everyday household materials and a glue gun. In the first interview on “Today’s Special,” Mindy discusses what she’s built for her son, how she got started, where she gets her ideas, and how adaptive devices for special-needs children don’t always have to look so “medical.”

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A walk in the woods

Sunday, July 29th, 2007
Whether he knows it or not, Alex is having a great summer. For the first time since he started school six years ago, he is not going to the summer school program. He misses school, but thanks to Grandpa’s generosity, he is at a Y day camp with an excellent program for kids with special needs. Jill and Jeff discuss tips for making camp a successful experience, their hopes for next summer, and the advantages of day camp over summer school.
 
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This didn’t hurt a bit

Tuesday, June 12th, 2007

For autistic kids, learning how to go to the dentist can be at least as critical as toilet training, but the visit can be a real trial: screeching, squirming, bolting, and an almost unbelievably tight clamping shut of Alex’s mouth. His latest visit went well, and Jill and Jeff share their thoughts on getting him both through this appointment and comfortable with this vital and lifelong part of health.

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Eating and traveling and other stuff

Monday, May 21st, 2007

Alex’s eating has been a challenge for years, but lately bananas and malted milk have made their way onto his “Yea!” list. Here’s how we did it, along with some thoughts on camping with Alex, and how everyone survives when Jeff has to travel and leave Jill alone and in charge of the kids — or the kids in charge of Jill. This podcast is now available on our archives.

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In my experience…

Wednesday, May 2nd, 2007

Jill has come up with 10 can’t-miss tips and pointers for Early Intervention providers and service coordinators, based on her (sometimes exasperating) experiences with Alex in EI. With just a right amount of edge she recalls the bad stuff that could have been done better and the great stuff that was done well to make her family’s EI work the best it could, and to give Alex a start toward school.

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Time off

Monday, April 9th, 2007

Saturdays, school holidays, vacations… anytime’s a good time to go crazy with Alex at home. He loves structure; we love to sit around and catch up on reading, do a little housework, sip coffee. In short, no structure. This is fine for an occasional weekend. But a long school break (and we’re on Day 9, with a few days to go) brings its own challenges. Here’s a slice of what it’s like and how we cope. This podcast is available in our archives.

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